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ACC - Research

The ACC Network team at the University of Maine conducts research to develop a behavioral phenotype of individuals with ACC and other callosal disorders including issues pertaining to social, physical, communication and developmental characteristics

The team collaborates with researchers both within and outside the University of Maine in the fields of genetics, psychology, neuropsychology, educational psychology and other related fields to promote new knowledge and understanding of callosal conditions and the potential impact on health, development, behavior and cognition.

Inquires from researchers regarding the recruitment of participants for ACC-related research projects in neuropsychology, genetics, speech/language pathology and other related fields are welcome. Please contact the ACC Network for more information.

Research Reports

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Refereed Publications

Badaruddin, D., Andrews, G., Bolte, S., Schilmoeller, K., Paul, L.K., Brown, W.S. (2007). Social and behavioral problems of children with agenesis of the corpus callosum. Child Psychiatry and Human Development, 38, 287-302.

Doherty, D.R., Tu, S., Schilmoeller, K., & Schilmoeller, G. (2006). Health-related issues in individuals with agenesis of the corpus callosum. Child: Care, Health and Development, 3 (3), 333-42.

Schilmoeller, G.L. & Schilmoeller, K.J. (2000). Filling a void: Facilitating family support through networking for children with a rare disorder. Family Science Review, 13, 224-233.

Sherr, E.H., Owen, R., Albertson, D., Pinkel, D., Cotter, P., Slatvotinek, A., Hetts, S., Jeremy, R., Schilmoeller, G., Schilmoeller, K., Wakahiro, M., & Barkovich, J. (2005). Genomic microarray analysis identifies candidate loci in patients with corpus callosum anomalies. Neurology, 65, 1496-1498.

Stickles, J. L., Schilmoeller, G.L., & Schilmoeller, K.J. (2002). A 23-year review of communication development in an individual with agenesis of the corpus callosum. International Journal of Disability, Development, and Education, 49, 367-383.

Refereed Published Abstracts

Badaruddin, D., Andrews, G. Schilmoeller, K.J., Boelte, S., Paul, L.K., & Brown, W.S. (2005). Social and behavioral deficits in children with agenesis of the corpus callosum [Abstract]. International Neuropsychological Society Annual Meeting Program & Abstracts, 38.

Everett, T., Schilmoeller, G., & Schilmoeller, K. (2002). Callosal agenesis and attention deficit hyperactivity disorder: A connection? [Abstract]. Journal of the International Neuropsychological Society, 8, 281.

Moes, P., Schilmoeller, G., & Schilmoeller, K. (2005). Agenesis of the corpus callosum: Physical, sensory, and motor characteristics [Abstract]. International Neuropsychological Society Annual Meeting Program & Abstracts, 115-116.

Schilmoeller, G., Schilmoeller, K., & Doherty, D. (2004). Social interaction in individuals with and without a corpus callosum [Abstract]. International Neuropsychological Society Annual Meeting Program & Abstracts, 219.

Schilmoeller, G.L., Moes, P., Schilmoeller, K.J., & Nowak, E. (2002). Agenesis of the corpus callosum: Physical, social, and cognitive characteristics [Abstract]. Journal of the International Neuropsychological Society, 8, 282.

Other Publications and Educational Materials

Schilmoeller, K.J. & Paul, L.K. (2007). ACC and Me. An illustrated children’s book published by the ACC Network and the National Organization for Disorders of the Corpus Callosum. (Available by contacting the ACC Network.)

Doherty, D.R. & Schilmoeller, K.J. (Eds.), (2004). The ACC Network Album: Including Individuals with Agenesis of the Corpus Callosum and Other Callosal Anomalies. Yorba Linda, CA: National Organization for Disorders of the Corpus Callosum.

National Organization for Disorders of the Corpus Callosum & ACC Network (Producer). (2004). Agenesis of the corpus callosum: Neuroanatomy, callosal functions, and cognitive processes in ACC [DVD and VHS]. (Available from the National Organization of Disorders of the Corpus Callosum, PMB 363, 18032-C Lemon Drive, Yorba Linda, CA 92886)

National Organization for Disorders of the Corpus Callosum & ACC Network (Producer). (2004). Living with ACC [DVD and VHS]. (Available from the National Organization of Disorders of the Corpus Callosum, PMB 363, 18032-C Lemon Drive, Yorba Linda, CA 92886)

National Organization for Disorders for the Corpus Callosum & ACC Network. (2004). Disorders of the corpus callosum: Facts about agenesis of the corpus callosum and other diagnoses [Brochure]. Yorba Linda, CA: National Organization for Disorders for the Corpus Callosum.

Paul, L.K. (2004). Introduction to agenesis of the corpus callosum and other callosal disorders. In K.J. Schilmoeller, G.L Schilmoeller, W.S. Brown, & L.K. Paul (Series Eds.), Disorders of the corpus callosum. Yorba Linda, CA: National Organization for Disorders of the Corpus Callosum.

Schilmoeller, G., & Schilmoeller, K. (2004, Summer). Advocacy from the inside out. The Child, Youth, and Family Advocate, 27, (3), 2 -4.

Schilmoeller, K.J., & Schilmoeller, G.L. (Eds.). (1990, November). Directory of families with children who have agenesis of the corpus callosum (1 st ed.). Orono, ME: ACC Network.

Schilmoeller, K.J., & Schilmoeller, G.L. (Eds.). (1992, June). Directory of families with children who have agenesis of the corpus callosum (2 nd ed.). Orono, ME: ACC Network.

Schilmoeller, K.J., & Schilmoeller, G.L. (Eds.). (1997). The ACC directory: Including individuals with agenesis of the corpus callosum and related conditions. Orono, ME: ACC Network.

Schilmoeller, K.J., & Schilmoeller, G.L. (Eds.). (2003, March). The ACC Network directory: Including individuals with agenesis of the corpus callosum and related conditions. Orono, ME: ACC Network.


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